Latest News

We are pleased to share with you the latest podcast from HypoPara Unscripted, which is produced by the Hypoparathyroidism Association.

A new open-access paper in nature communications, published August 1, 2026, reports on two people with APECED who were treated with ruxolitinib as autoimmune endocrine dysfunction was developing. Dr. Lionakis and his team of investigators reported that JAK1/2 inhibition with ruxolitinib halted progression and reversed biochemical and clinical abnormalities associated with evolving hypoparathyroidism in one…

The APS Type 1 Foundation is delighted to announce that our 7th International Symposium on APS Type 1 will be held July 15–17, 2027, in Baltimore, Maryland. Our international symposia bring together people and families living with APS Type 1/APECED, clinicians, scientists, and other experts for education, research updates, practical information, and community connection. Baltimore…

The APS Type 1 community had a patient voice on Capitol Hill this summer. Samantha Finch shared her journey at a Congressional briefing on autoimmune disease research—and how research can change the lives of patients and families. On July 22, 2026, the Autoimmune Association and the National Coalition of Autoimmune Patient Groups hosted a Congressional…

Thank you for joining us for our June 2026 HUDDLE. In case you missed it, click the button below to see the slides from the meeting. Following these slides, we had a terrific discussion about the NIH natural history study, school resources for adrenal insufficiency, and more. We look forward to seeing more folks when…

The APS Type 1 Foundation is proud to partner with Raregivers™, an organization dedicated to supporting individuals and families impacted by rare diseases. Raregivers™ was created with a simple but powerful mission: to ensure that patients, caregivers, and advocates never feel alone in their journey. By fostering connection, education, and emotional support, Raregivers™ helps build…

HUDDLE with the APS Type 1 Community This year we are delighted to introduce HUDDLEs – virtual support and mentoring group meetings focused on families living with APS Type 1. The group meets virtually every other month and provides a safe and confidential space for patients, their families, and caregivers to talk about their shared…

After a one year hiatus, our online “race” is back! The goal of this event is to raise awareness and fundraise for APS Type 1 research and education in association with Rare Disease Day.  The Olympics-themed trek starts on Sunday, February 21st. We invite anyone and everyone to run, walk, bike, swim, snowboard, lift weights,…

The APS Type 1 Foundation wishes you a happy and healthy 2026. Taking a look back on the milestones of 2025, we have a lot to be grateful for as we move into the new year.   A Look Back at 2025 The 6th International Symposium on APS Type 1 This past year, we hosted The…